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April 22, 2007

In Turnabout, Infant Deaths Climb in South 

By ERIK
<http://topics.nytimes.com/top/reference/timestopics/people/e/erik_eckholm/i
ndex.html?inline=nyt-per> ECKHOLM

HOLLANDALE, Miss. - For decades, Mississippi
<http://topics.nytimes.com/top/news/national/usstatesterritoriesandpossessio
ns/mississippi/index.html?inline=nyt-geo>  and neighboring states with large
black populations and expanses of enduring poverty made steady progress in
reducing infant death. But, in what health experts call an ominous portent,
progress has stalled and in recent years the death rate has risen in
Mississippi and several other states. 

The setbacks have raised questions about the impact of cuts in welfare and
Medicaid and of poor access to doctors, and, many doctors say, the growing
epidemics of obesity
<http://topics.nytimes.com/top/news/health/diseasesconditionsandhealthtopics
/obesity/index.html?inline=nyt-classifier> , diabetes
<http://topics.nytimes.com/top/news/health/diseasesconditionsandhealthtopics
/diabetes/index.html?inline=nyt-classifier>  and hypertension
<http://topics.nytimes.com/top/news/health/diseasesconditionsandhealthtopics
/bloodpressure/index.html?inline=nyt-classifier>  among potential mothers,
some of whom tip the scales here at 300 to 400 pounds.

"I don't think the rise is a fluke, and it's a disturbing trend, not only in
Mississippi but throughout the Southeast," said Dr. Christina Glick, a
neonatologist in Jackson, Miss., and past president of the National
Perinatal Association. 

To the shock of Mississippi officials, who in 2004 had seen the infant
mortality rate - defined as deaths by the age of 1 year per thousand live
births - fall to 9.7, the rate jumped sharply in 2005, to 11.4. The national
average in 2003, the last year for which data have been compiled, was 6.9.
Smaller rises also occurred in 2005 in Alabama
<http://topics.nytimes.com/top/news/national/usstatesterritoriesandpossessio
ns/alabama/index.html?inline=nyt-geo> , North
<http://topics.nytimes.com/top/news/national/usstatesterritoriesandpossessio
ns/northcarolina/index.html?inline=nyt-geo> Carolina and Tennessee
<http://topics.nytimes.com/top/news/national/usstatesterritoriesandpossessio
ns/tennessee/index.html?inline=nyt-geo> . Louisiana
<http://topics.nytimes.com/top/news/national/usstatesterritoriesandpossessio
ns/louisiana/index.html?inline=nyt-geo>  and South
<http://topics.nytimes.com/top/news/national/usstatesterritoriesandpossessio
ns/southcarolina/index.html?inline=nyt-geo> Carolina saw rises in 2004 and
have not yet reported on 2005. 

Whether the rises continue or not, federal officials say, rates have
stagnated in the Deep South at levels well above the national average. 

Most striking, here and throughout the country, is the large racial
disparity. In Mississippi, infant deaths among blacks rose to 17 per
thousand births in 2005 from 14.2 per thousand in 2004, while those among
whites rose to 6.6 per thousand from 6.1. (The national average in 2003 was
5.7 for whites and 14.0 for blacks.) 

The overall jump in Mississippi meant that 65 more babies died in 2005 than
in the previous year, for a total of 481. 

The toll is visible in Hollandale, a tired town in the impoverished Delta
region of northwest Mississippi. 

Jamekia Brown, 22 and two months pregnant with her third child, lives next
to the black people's cemetery in the part of town called No Name, where
multiple generations crowd into cheap clapboard houses and trailers. 

So it took only a minute to walk to the graves of Ms. Brown's first two
children, marked with temporary metal signs because she cannot afford
tombstones. 

Her son, who was born with deformities in 2002, died in her arms a few
months later, after surgery. Her daughter was stillborn the next year.
Nearby is another green marker, for a son of Ms. Brown's cousin who died at
four months, apparently of pneumonia. 

The main causes of infant death in poor Southern regions included premature
and low-weight births; Sudden Infant Death Syndrome, which is linked to
parental smoking
<http://topics.nytimes.com/top/news/health/diseasesconditionsandhealthtopics
/smoking/index.html?inline=nyt-classifier>  and unsafe sleeping positions as
well as unknown causes; congenital defects; and, among poor black teenage
mothers in particular, deaths from accidents and disease.

Dr. William Langston, an obstetrician at the Mississippi Department of
Health, said in a telephone interview that officials could not yet explain
the sudden increase and were investigating. Dr. Langston said the state was
working to extend prenatal care and was experimenting with new outreach
programs. But, he added, "programs take money, and Mississippi is the
poorest state in the nation."

Doctors who treat poor women say they are not surprised by the reversal. 

"I think the rise is real, and it's going to get worse," said Dr. Bouldin
Marley, an obstetrician at a private clinic in Clarksdale since 1979. "The
mothers in general, black or white, are not as healthy," Dr. Marley said,
calling obesity and its complications a main culprit.

Obesity makes it more difficult to do diagnostic tests like ultrasounds and
can lead to hypertension and diabetes, which can cause the fetus to be
undernourished, he said. 

Another major problem, Dr. Marley said, is that some women arrive in labor
having had little or no prenatal care. "I don't think there's a lack of
providers or facilities," he said. "Some women just don't have the get up
and go." 

But social workers say that the motivation of poor women is not so simply
described, and it can be affected by cuts in social programs and a dearth of
transportation as well as low self esteem. 

"If you didn't have a car and had to go 60 miles to see a doctor, would you
go very often?" said Ramona Beardain, director of Delta Health Partners. The
group runs a federally financed program, Healthy Start, that sends social
workers and nurses to counsel pregnant teenagers and new mothers in seven
counties of the Delta. "If they're in school they miss the day; if they're
working they don't get paid," Ms. Beardain said.

Poverty has climbed in Mississippi in recent years, and things are tougher
in other ways for poor women, with cuts in cash welfare and changes in the
medical safety net. 

In 2004, Gov. Haley
<http://topics.nytimes.com/top/reference/timestopics/people/b/haley_barbour/
index.html?inline=nyt-per> Barbour came to office promising not to raise
taxes and to cut Medicaid. Face-to-face meetings were required for annual
re-enrollment in Medicaid and CHIP, the children's health insurance program;
locations and hours for enrollment changed, and documentation requirements
became more stringent. 

As a result, the number of non-elderly people, mainly children, covered by
the Medicaid and CHIP programs declined by 54,000 in the 2005 and 2006
fiscal years. According to the Mississippi Health Advocacy Program in
Jackson, some eligible pregnant women were deterred by the new procedures
from enrolling. 

One former Medicaid official, Maria Morris, who resigned last year as head
of an office that informed the public about eligibility, said that under the
Barbour administration, her program was severely curtailed. 

"The philosophy was to reduce the rolls and our activities were contrary to
that policy," she said. 

Mississippi's Medicaid director, Dr. Robert L. Robinson, said in a written
response that suggesting any correlation between the decline in Medicaid
enrollment and infant mortality was "pure conjecture."

Dr. Robinson said that the new procedures eliminated unqualified recipients.
With 95 enrollment sites available, he said, no one should have had
difficulty signing up. 

As to Ms. Morris's charge that information efforts had been curbed, Dr.
Robinson said that because of the frequent turnover of Medicaid directors -
he is the sixth since 2000 - "our unified outreach program was interrupted."
He said it has now resumed. 

The state Health Department has cut back its system of clinics, in part
because of budget shortfalls and a shortage of nurses. Some clinics that
used to be open several days a week are now open once a week and some offer
no prenatal care. 

The department has also suffered management turmoil and reductions in field
staff, problems so severe that the state Legislature recently voted to
replace the director. 

Oleta Fitzgerald, southern regional director for the Children's Defense
Fund, said: "When you see drops in the welfare rolls, when you see drops in
Medicaid and children's insurance, you see a recipe for disaster. Somebody's
not eating, somebody's not going to the doctor and unborn children suffer." 

Visits with pregnant women and mothers in several Delta towns suggest that
many poverty-related factors - including public policies, personal behaviors
and health conditions - may contribute to infant deaths. 

Krystal Allen, a cousin of Jamekia Brown's, was 17 when she had her first
baby. When he was 4 months old, she said, he developed breathing problems.
Ms. Allen took the child to an emergency room, where he was put on a
vaporizer and given an antibiotic
<http://topics.nytimes.com/top/news/health/diseasesconditionsandhealthtopics
/antibiotics/index.html?inline=nyt-classifier>  and a prescription and they
were sent home, where they slept for a few hours. 

"When I woke up I thought he was sleeping, and I was getting ready for
church," Ms. Allen said. "But he was dead." 

Now 21, a mother of two with a third on the way, Ms. Allen lives in a
sparsely furnished house in Hollandale with her unemployed boyfriend and his
mother. Her children live with her parents. 

Ms. Allen greeted visitors with breakfast in hand: a bottle of Mountain Dew
and a bag of chips. 

Janice Johnson, a social worker with Delta Health Partners, urged her to eat
more healthily. "I'm going to change my diet
<http://topics.nytimes.com/top/news/health/diseasesconditionsandhealthtopics
/diet/index.html?inline=nyt-classifier>  one day," Ms. Allen replied. 

She had been to a doctor for one visit but had to sign up for Medicaid to
get continued care. That required a 36-mile trip to an office in Greenville.


"Can't you go this Friday?" Ms. Johnson asked. 

"Well, if my mom is going to Greenville," Ms. Allen replied, "and if she has
gas in the car." 

As for Ms. Brown, having lost two babies and suffering from thyroid disease
and hypertension, her latest pregnancy
<http://topics.nytimes.com/top/news/health/diseasesconditionsandhealthtopics
/pregnancy/index.html?inline=nyt-classifier>  is considered high risk. Ms.
Johnson has helped arrange for intensive medical monitoring.

Eunice Brown, 21, another of Ms. Johnson's clients, was fortunate nothing
went wrong with her first pregnancy. She was afraid to tell her mother. In
the eighth month of her pregnancy, she went to the hospital with a stomach
ache and delivered a healthy baby. 

"I was 15 and I didn't think prenatal care mattered that much," she said in
the one-bedroom home she shares with her mother, her three children and two
nieces her mother is tending. Ms. Brown, who was three months' pregnant with
her fourth child, said she would apply for Medicaid "when I get the
transportation." The family has lived mainly off her welfare checks and her
intermittent work, in elderly day care, which led her welfare check to be
reduced from $194 a month to $26 a month. A father "sometimes helps with
money," she said. 

In the past 10 years, the infant mortality rate for blacks in most of the
Delta has averaged about 14 per thousand in some counties and more than 20
per thousand in others. But just to the south of Hollandale, Sharkey County,
one of the poorest, has had a startlingly different record. From 1991
through 2005, the rate for blacks hovered at around 5 per thousand. 

State officials say the county's population is too small - it registers only
100 births a year - to be statistically significant. But many experts feel
it is no coincidence that a steep drop in infant deaths followed the start
of an intensive home-visiting system run by the Cary Christian Center, using
local mothers as counselors. 

"If this is a fluke it's a 15-year fluke," said Dr. Glick, the
neonatologist. 

The program, which is paid for with private money, buses nearly all pregnant
blacks in Sharkey and a small neighboring county to pre- and postnatal
classes. 

Irma Johnson, who has worked for the Cary Center for 14 years, was a
soothing presence as she visited Erica Moore, a 24-year-old with young
twins. With Vaseline, warm water, a toothbrush and soft murmurs, she showed
her how to combat cradle cap, a scaly buildup on the scalp. 

But personal attention cannot always change ingrained attitudes. 

Barbara Williams, another veteran counselor of the Cary center, made an
unannounced visit to a cluster of trailers in Anguilla occupied by the
extended Jackson family. 

"I've been following this family for 18 years, and they're in a bad cycle,"
Ms. Williams said, noting that three generations of women had dropped out of
high school. 

As Ms. Williams entered one crowded trailer a young woman tried to hide,
then stood defiantly. The woman, Victoria Jackson, 22, already has three
small children and was five months pregnant. 

No, she said, she has not signed up for Medicaid and she has not seen a
doctor, and she brushed aside offers of help. 

Ms. Williams, visibly upset, said later, "Victoria never gives a reason why
she doesn't see a doctor. I guess she thinks she's gotten away with it three
times already."


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